Sunday, March 18, 2012

The “Dangerous” Veteran: An Inaccurate Media Narrative Takes HoldThe “Dangerous” Veteran: An Inaccurate Media Narrative Takes Hold

Source:  VA "Vantage Point: Dispatches from the U.S. Department of Veterans Affairs
http://www.blogs.va.gov/VAntage/6026/the-%E2%80%9Cdangerous%E2%80%9D-veteran-an-inaccurate-media-narrative-takes-hold/

**********************


The “Dangerous” Veteran: An Inaccurate Media Narrative Takes Hold

In a San Diego, California neighborhood, debate is raging: The Department of Veterans Affairs is planning to establish a residential treatment program for Veterans with PTSD and mild traumatic brain injuries.
On its face, the idea doesn’t seem controversial. After all, given two wars in the past decade, the U.S. government is doing what it can to provide Vets with the best care possible. But that’s not how some San Diegans view the situation. They say the facility will be too close to a school. They say it’s “just the wrong place.”
Without saying as much, this is an example where some in a community are simply not comfortable with what they view as damaged and potentially unstable Veterans being near a school. Of course, this attitude doesn’t take place in a vacuum, and it wasn’t formed recently.  There is a reason people have such views of those who once protected them.

If you’ve read the news lately, you may have seen one of several stories describing recent Veterans as “ticking time bombs” or as “dangerous” on account of post-traumatic stress. It’s a narrative that has persisted for decades, but a handful of recent high-profile incidents have resulted in headlines like these:
Police get help with vets who are ticking bombs (USA TODAY)
Experts: Vets’ PTSD, violence a growing problem (CNN)
Veteran charged with homeless murders: Hint of larger problem for US military? (Christian Science Monitor)
While these stories highlight horrific killings, the connection between disturbed murderers like Benjamin Barnes and Itzcoatl Ocampo and their service in combat is weak—despite what media reports and popular culture would have many believe.  And such rhetoric, when solidified in the public consciousness, can have negative consequences for both Veterans and society—like causing Veterans to avoid seeking help or employers to avoid hiring them.
“This is a huge misrepresentation of Veterans,” said Rich Blake, an Iraq War Veteran and psychology doctoral student at Loyola University Maryland. “Crazed? That’s even more extreme.”
For the past two years, Blake has worked with Veterans who have PTSD in the residential trauma recovery program and the women’s mental health clinic at the Baltimore VA Medical Center. He doesn’t shy away from the obvious—that combat and wartime experience can have mental health consequences—which can contribute to some Vets acting out. But he throws caution to the idea that this is an epidemic.
“[These incidents] are like shark attack stories,” said Blake. “People are scared of shark attacks but they don’t happen that often.”
In a 2007 report on Veterans in state and federal prison—the most current report of its kind—researchers at theBureau of Justice Statistics worked to demystify the vagaries surrounding Veterans and crime. As it turned out, during the past three decades, the number of Veterans in state and federal prison had actually declined. And when the mental health of Veterans in prison was compared to that of their civilian counterparts, there seemed to be a trend: Civilians reported a higher rate of “any mental health problems” than Veterans—both in state and federal prison.
When it came to psychotic disorder, which represents the more extreme end of the spectrum of mental health problems, the rates remained higher among civilians as well.
When the survey was conducted in 2004, the Veteran population in the U.S. was 24 million. America’s prisons were home to 140,000 Vets—of which 21,000 had been convicted of murder. And while those numbers seem large, this accounts for less than 1/10 of one percent of the entire Veteran population. A far cry from what some in the media would lead us to believe.
While a small fraction of Veterans have been convicted of murder, it often matters little in a media atmosphere which can place a premium on sensational headlines. In such an environment, Veterans are often stereotyped by those with an unclear understanding of what it means to live with PTSD. And the fact is, there is no limit to the number of reasons why a person might choose to become violent.
“The headlines are irresponsible,” said Brian Hawthorne, an Iraq War Veteran and board member of Student Veterans of America. “Murder should be talked about but shouldn’t be centered on the instability of a few in our military population.”
According to Gerhard Falk’s Murder: An Analysis of Its Forms, Conditions, and Causes, the occupations most likely to include murderers are laborers, service workers, and students. A comparison of those findings with the FBI’s Most Wanted list for violent crimes in 2012 shows a similar occurrence of occupations. Overwhelmingly, the top three offenders by occupation are general laborers, construction workers, and gang members.
Of course, we rarely—if ever—see articles hinting at a larger problem within the laborer field or the construction field. Likely, this is because we inherently understand that occupation or work experience doesn’t typically factor into a propensity for murder. Then again, headlines that scream, “Man Yielding Concrete Mix Charged with Murder: Hint of a Larger Problem?” are likely not as profitable.
Unfortunately, this rehashed portrayal of PTSD, reminiscent of the Vietnam era, has the power to deter Veterans from openly speaking about their service—especially in today’s economic climate—when unemployment among younger Vets hovers between 20 and 30 percent. That concerns Iraq Veteran Ryan Gallucci, now with the Veterans of Foreign Wars.
“Vietnam Veterans were stereotyped as the crazy Veteran, but over the years we’ve proven that isn’t the case,” said Gallucci, the VFW’s National Legislative Service Deputy Director. “What concerns us are today’s Veterans sitting down for a job interview and once they mention their military service, the tone of the conversation changes.”
While most can discern between sensationalized news stories, the reality is that less than one percent of the population serves in uniform—leaving many with a slim exposure to today’s Vets. And this is the image they are fed—as seen in a January issue of The Week:
Blackouts, flashbacks, night terrors, and sudden rages are common among veterans; suicide, alcoholism, and drug use have surged. PTSD has been cited as a factor in many acts of vets running amok. . .
As long as such language remains prevalent and acceptable, college admission offices, future employers, and those alike can peg today’s Veterans as “running amok” with the tendency to burst into “sudden rages”—quietly widening the divide further between Veterans and civilians.
“Overall this creates at most a hostile and at least uncomfortable situation for Veterans in school or the workplace,” said Hawthorne. “Teachers may not encourage Vets to share their opinions in the classroom out of fear of creating a negative environment.”
Dr. Sonja Batten, the Deputy Chief Consultant for Specialty Mental Health in the Department of Veterans Affairs added, “The truth is, PTSD doesn’t have to and shouldn’t impede success in everyday life for Veterans. Years of research have demonstrated again and again that most people recover naturally after experiencing potentially traumatic events, and we have effective treatments for those who develop more significant problems with PTSD. I think what gets lost in these stories are the amazing strengths that our nation’s Veterans have.”
In fiscal year 2011, over 476,000 Veterans received treatment at VA medical centers and clinics across the country for PTSD. Of those, 99,000 were Iraq and Afghanistan Veterans. Dr. Batten expects more Vets to seek treatment in the coming years.
“We have made progress in the fight against PTSD stigma,” she said. “Veterans are now more likely to recognize if something is wrong and come forward so that they can move on with their lives.”
While the country has slowly begun to recognize post-traumatic stress—from “soldier’s heart” to “shell shock” to “combat fatigue”—there are still barriers preventing Veterans from seeking help. According to one survey of OEF/OIF Veterans, there is still legitimate concern over asking for care.
With imbalanced portrayals of PTSD, these ideas will continue to fuel misunderstandings like the type seen in San Diego. But we have the leverage to change this—to make a conscious decision to understand what it means to live with PTSD. And to give those who have served a fair shot by stripping away those unwarranted stereotypes and seeing Veterans for who they really are.
If you feel you might be struggling with post-traumatic stress, visit our PTSD resource directory for information on symptoms, treatments, issues specific to female Veterans, and more. For immediate help, call the Veterans Crisis Line at 1-800-273-8255. It’s open day and night, along with our online chat. If you prefer text messaging, send a message to 838255.

Thursday, March 15, 2012

Record Level Congressional Support for Gulf War Illness Treatment Funding as Kucinich-Roe Sign-On Deadline is Reached



Written by Anthony Hardie, 91outcomes.com
March 15, 2012

(91outcomes.com) - As today's sign-on deadline was reached and the dust settled, all told there were 65 signers to the Kucinich-Roe "Dear Colleague" letter -- by far the largest number ever in the history of the relatively new, treatment-focused Gulf War Illness Congressionally Directed Medical Research Program (GWI CDMRP).

Party politics were put aside by the bipartisan supporters of the program who added their signature to the letter supporting FY13 Defense funding for the program, which is narrowly targeted at improving the health and lives of veterans suffering from chronic multisymptom illness popularly referred to as Gulf War Illness (GWI).  The signatories ranged across the entire political spectrum, from liberals like lead author Rep. Dennis Kucinich (D-OH) and Rep. Judy Chu (D-CA) to current and former Tea Party Caucus members like co-lead author Rep. Phil Roe (R-TN) and Rep. Walter Jones (D-NC).

And, among the Congressional stars adding their signatures were the Chair and Ranking Minority Member of the House Committee on Veterans' Affairs -- conservative Rep. Jeff Miller (R-FL) and liberal Rep. Bob Filner (D-CA), as well as Ranking Minority Members of the House Budget Committee, Rep. Chris Van Hollen (D-MD); the House Judiciary Committee, Rep. John Conyers (D-MI); the House Committee on Rules, Rep. Louise Slaughter (D-NY); and the House Select Committee on Intelligence, Rep. Dutch Ruppersberger (D-MD-2).

The record level of support is likely the result of a cascade of factors. Scientific legitimization at the highest levels has appeared to lead to new interest in the medical research community, followed by new research findings that have begun unravelling GWI's purported mysteries and have provided early support for assertions that it is likely that effective treatments can be found.  In turn, it seems that hope is growing in the veterans community, perhaps the reason for this surge of renewed activism by veterans and their supporters.

High level government reports from the U.S. Department of Veterans Affairs in 2008 and the Institute of Medicine, National Academy of Sciences in 2010 found that GWI at its epicenter affects as many as 250,000 veterans of the 1991 Gulf War, as well as an indeterminate number of other non-deployed and later deployed veterans at lesser but troubling rates.  The gold standard IOM report also found that GWI is a physical -- not psychiatric -- condition, that it is likely associated with environmental and other factors, and that it is possible that effective treatments can be found -- encouraging news for veterans who had claimed as much all along.

Over the course of the last two weeks, dozens if not hundreds of individual veterans and their supporters contacted House offices in a flurry of requests that resulted in this record number of Members signing on to the letter to the leadership of the House Appropriations Committee, which is expected to take up the Defense Appropriations bill within the next several weeks. A similar outpouring by Gulf War veterans and their supporters was seen last month, with 169 public comments submitted to VA as part of an obscure but Gulf War veteran-related rulemaking process that typical generates less than a dozen such submissions.

In previous years, a parallel bipartisan effort supporting GWI CDMRP funding has been led in the U.S. Senate by Senator Bernie Sanders (I-VT).  A similar initiative for FY13 funding is anticipated soon.

***********

Kucinich-Roe FY13 GWI CDMRP Defense Funding "Dear Colleague"
Alphabetical List of Cosigners 


Rep. Tammy Baldwin (D-WI-2)
Rep. Shelley Berkely (D-NV-1)
Rep. Gus Bilirakis (R-FL-9), Vice Chair-HVAC
Rep. Earl Blumenauer (D-OR-3)
Rep. Leonard Boswell (D-IA-3)
Rep. Bruce Braley (D-IA-1), HVAC, Ranking-HVAC-EO
Rep. Corrine Brown (D-FL-3), HVAC
Rep. Russ Carnahan (D-MO-3), HVAC
Rep. Andre Carson (D-IN-7)
Rep. Judy Chu (D-CA-32)
Rep. David Cicilline (D-RI-1)
Rep. John Conyers, Jr. (D-MI-14), Ranking-House Judiciary Committee
Rep. Susan Davis (D-CA-53) - HASC, Ranking-HASC-MP
Rep. Peter DeFazio (D-OR-4)
Rep. Diana DeGette (D-CO-1), Minority Chief Deputy Whip
Rep. Lloyd Doggett (D-TX-25)
Rep. Keith Ellison (D-MN-5)
Rep. Bob Filner (D-CA-51), Ranking-HVAC
Rep. Marcia Fudge (D-OH-11)
Rep. Elton Gallegly (R-CA-24)
Rep. Charles Gonzalez (D-TX-20)
Rep. Raul Grijalva (D-AZ-7)
Rep. Alcee Hastings (D-FL-23)
Rep. Mazie Hirono (D-HI-2)
Rep. Rush Holt (D-NJ-12)
Rep. Steve Israel (D-NY-25)
Rep. Jesse Jackson, Jr. (D-IL-2), HAC
Rep. Bill Johnson (R-OH-6), HVAC, Chair-HVAC-O&I
Rep. Hank Johnson (D-GA-4), HASC
Rep. Walter Jones (R-NC-3), HASC
Rep. Ron Kind (D-WI-3)
Rep. Larry Kissell (D-NC-8)
Rep. Dennis Kucinich (D-OH-10)
Rep. Rick Larsen (D-WA-2), HASC
Rep. Barbara Lee (D-CA-9), HAC
Rep. Dave Loebsack (D-IA-2), HASC, HASC-MP
Rep. Carolyn Maloney (D-NY-14)
Rep. Carolyn McCarthy (D-NY-4)
Rep. Jim McDermott (D-WA-7)
Rep. Jim McGovern (D-MA-3)
Rep. Michael Michaud (D-ME-2), HVAC, Ranking-HVAC-H
Rep. Jeff Miller (R-FL-1), HASC, Chair-HVAC
Rep. Gwen Moore (D-WI-4)
Rep. Eleanor Holmes Norton (D-DC-1)
Rep. Bill Pascrell, Jr. (D-NJ-8)
Rep. Chellie Pingree (D-ME-1), HASC, HASC-MP
Rep. Charlie Rangel (D-NY-15)
Rep. Silvestre Reyes (D-TX-16), HASC, HVAC
Rep. Laura Richardson (D-CA-37)
Rep. Phil Roe (R-TN-1), HA
Rep. Dutch Ruppersberger (D-MD-2), HASC, Ranking-House Intelligence Committee
Rep. Tim Ryan (D-OH-17), HASC
Rep. Gregorio Kilili Camacho Sablan (D-MP-1)
Rep. Jan Schakowsky (D-IL-9), Minority Chief Deputy Whip
Rep. Kurt Schrader (D-OR-5)
Rep. Bobby Scott (D-VA-3)
Rep. Louise Slaughter (D-NY-28), Ranking-House Rules Committee
Rep. Jackie Speier (D-CA-12)
Rep. Pete Stark (D-CA-13)
Rep. Betty Sutton (D-OH-13), HASC
Rep. Mike Turner (R-OH-3), HASC
Rep. Chris Van Hollen (D-MD-8), Ranking-House Budget Committee
Rep. Tim Walz (D-MN-1), HVAC
Rep. Debbie Wasserman Schultz (D-FL-20), Minority Chief Deputy Whip
Rep. Peter Welch (D-VT-1), Minority Chief Deputy Whip


Key Committee Assignments

Ranking:  Ranking Minority Member

HAC:  House Appropriations Committee
            HAC-D:  Subcommittee on Defense

HASC:  House Armed Services Committee
            HASC-MP: Subcommittee on Military Personnel

HVAC:  House Veterans' Affairs Committee
            HVAC-DAMA: Subcommittee on Disability Assistance & Memorial Affairs
            HVAC-EO: Subcommittee on Economic Opportunity
            HVAC-H:  Subcommittee on Health
            HVAC-O&I:  Subcommittee on Oversight & Investigations




Saturday, March 3, 2012

Gulf War Veterans' Push for FY13 GWI CDMRP Funding Begins with a Bang


Written by Anthony Hardie, 91outcomes.com
March 3, 2012


(Washington, DC - 91outcomes.com) - This year's push for funding the Peer Reviewed Gulf War Illness Congressionally Directed Medical Research Program (CDMRP) has begun with a bang -- an initial request of $25 million for the next fiscal year that begins this October.  


The Fiscal Year 2013 initiative to request $25 in treatment-oriented medical research Defense funding to improve the health and lives of ill veterans is being led by Democratic Congressman Dennis Kucinich (D-Ohio).  Bipartisan legislative efforts led by Kucinich last year resulted in a three-fifths vote on the House floor to support a 25 percent increase in the program, which is seen by Gulf War veterans as critical to potentially improving their health and unparalleled in the history of federally directed Gulf War related medical research.  


Rep. Phil Roe (R-Tennessee), a medical doctor who serves on the House Committee on Veterans' Affairs and has been instrumental in matters related to Gulf War veterans' health and relevant VA programs including a series of Congressional hearings, is co-leading the bipartisan legislative push with a "Dear Colleague" request to generally support the program.  Like each of the CDMRP medical research programs, ranging from TBI and PTSD to ALS, MS, and cancers, the GWI CDMRP much be specifically funded by Congress each year in order to continue.

According to official estimates, about one-quarter million of the roughly 697,000 who served in the 1991 Gulf War continue to suffer from chronic multi-symptom illness, popularly known as Gulf War Illness (GWI) or Gulf War Syndrome.  



The level of funding proposed by Kucinich would be sufficient to finally accomodate funding for all three highly promising interdisciplinary, interinstitutional GWI medical research consortia that have been in development for the last year, a long-sought goal of Gulf War veterans' health advocates.  


Launched on Thursday afternoon after significant behind the scenes work by legislators, legislative staff, and Gulf War veterans' advocates, Kucinich's target of $25 million in FY13 Congressionally directed Defense appropriations neatly coincides with the specifically recommended $25 million funding level by Institute of Medicine (IOM) Committee on Gulf War Veterans and Health chair Dr. Stephen Hauser. It also coincides with the $25 million level recommended by the Congressionally mandated Research Advisory Committee on Gulf War Veterans' Illnesses (RAC-GWVI) in its groundbreaking November 2008 report.  


The FY13 Independent Budget, authored by four of the largest veterans service organizations (VSO's) including DAV, VFW, PVA, and AMVETS and supported by nearly 60 other organizations, contains equally strong support of the GWI CDMRP:  "For FY 2013, the IBVSOs urge Congress to provide the funding level necessary for this research program to achieve the critical objectives of improving the health and lives of Gulf War veterans."


To date, VA research funding officials have tended to fund Gulf War related research proposals by researchers working alone, who must also be VA employees. VA's Office of Research and Development has been invited to collaborate with the GWI CDMRP -- which among other unique and efficient aspects, is open to any researcher anywhere -- to help advance GWI treatments and to ensure more efficient use of resources, particularly with research conducted by VA employees that could be funded through VA's existing mechanisms.        


CDMRP panelists and RAC members alike have expressed hope that VA might be able to aid in a renewed effort based on more recent evidence helping to unravel some of GWI's previous mysteries, including discoveries of neurological damage, neuro-immune dysregulation, and a chronic inflammatory state in GWI patients.


The Gulf War veteran community was angered in late 2009 with VA's announcement of the untimely dissolution of the only broad, interdisciplinary GWI medical research consortia ever funded by the federal government, which had been created by Congressional direction at the request of Gulf War veterans following years of expending hundreds of millions of dollars on DoD and VA research without any evidence-based results to help improve GWI patients' health.  


That lone previous consortia effort, led by Dr. Robert Haley of the University of Texas-Southwestern, comprised more than 200 researchers at six universities.  The team had developed an animal model of Gulf War chemical exposures, determined their effects on brain functions, and were making initial strides in unlocking treatments for the brain damage caused by the Gulf War chemical exposures when their efforts were cut short due to a contract dispute. 


Like Haley's efforts, the three consortia currently in development involve dozens of key researchers from a multitude of research institutions and labs, and are aimed squarely at treatments for Gulf War Illness patients.  Most are not VA employees and are therefore not eligible for VA research funding.


The consensus among GWI medical researchers is increasingly clear, including as publicly expressed by all three RAC scientific directors past and present:  With the right efforts, effective treatments can indeed be found for the neurologically-based GWI.   With the FY13 effort to finally adequately fund the GWI CDMRP now fully underway, it now appears possible that this long sought goal may finally be able to be achieved.  


To achieve that goal, Gulf War veterans and their advocates now have the unenviable task of convincing the more than 500 members of Congress to support their quest.  However, given the backing from VSO's and the scientific community, this time the stars might just be aligned in their favor.  


*****



WHAT CAN YOU DO TO HELP
FREQUENTLY ASKED QUESTIONS (FAQ's)




WHAT IS THE GOAL?


The overall goal is to develop effective treatments for the officially estimated one-quarter million veterans of the 1991 Gulf War who are still suffering from chronic multi-symptom illness, commonly know as Gulf War Illness, more than two decades later.  


These veterans were directly impacted by a veritable toxic soup of hazardous exposures during the short but intense war, and deserve every bit as much help as veterans as our nation is giving to those who suffer wartime and other service-related amputations, PTSD, and traumatic brain injuries (TBI).  




WHAT CAN I DO TO HELP? 


You can email, call, or write your elected Congressman/Congresswoman in the U.S. House of Representatives.  


If you do, request that he or she sign on to the Kucinich-Roe "Dear Colleague" letter supporting the FY13 Defense Appropriation for the Peer Reviewed Gulf War Illness Congressionally Directed Medical Research Program.


Many Member of Congress have an option to submit your comments from a quick form right on their webpage, which will come up after you enter your zip code in the top righthand corner of www.house.gov.  You can also use this as a quick way to find out who is your Representative in the House.




AT WHAT LEVEL SHOULD THE FUNDING BE SUPPORTED, AND WHY?


Rep. Dennis Kucinich (D-Oh.) is requesting $25 million for FY13 for the GWI CDMRP, which coincides with the $25 million recommended in an April 2010 letter by the IOM Gulf War and Health committee chair and in the November 2008 report of the Research Advisory Committee on Gulf War Veterans' Illnesses (RAC-GWVI).


Rep. Phil Roe, M.D. (R-Tenn.) is co-leading the effort to support the GWI CDMRP, calling for House Members to support this important program.  This dovetails with the request of many of the nation's largest veterans service organizations in their FY13 Independent Budget (p. 128).  




WHEN CAN I DO THIS?


Immediately, beginning March 1, 2012




WHEN IS THE DEADLINE? 


Soon.




IS THERE A SIMILAR EFFORT IN THE SENATE?  

A similar effort in the Senate is currently under development, and should be made public soon.  





*******




ADDITIONAL QUESTIONS



HASN'T ENOUGH ALREADY BEEN SPENT ON GULF WAR RESEARCH?



According to the November 2008 RAC report (p. 292):  
"As pointed out in the Committee’s 2004 report, if progress in the Gulf War research effort were to be measured by the number of dollars spent, or the number of projects funded, it might be argued that the federal government has mounted an impressive research effort on behalf of ill Gulf War veterans. But the Committee is committed to assessing federal Gulf War research in terms of its scientific merit and progress made in improving the health of ill veterans. Although substantial funding has been allocated for studies identified as “Gulf War research” by federal agencies since 1994, the Committee has identified significant problems related to the effective use and management of these funds."

January 2012 RAC staff analysis found that very little of the funding designated by VA officials as "Gulf War Research" was actually related to GWI or even specific to Gulf War veterans.




WHERE CAN I LEARN MORE ABOUT THE GWI CDMRP?


The Congressionally Directed Medical Research Program (CDMRP), a Congressionally directed activity funded under the U.S. Department of Defense, has a comprehensive website on the GWI program at:  http://cdmrp.army.mil/gwirp .


The CDMRP also publishes an overview of the program in its GWIRP program booklet.  






I'M A MEDICAL RESEARCHER, WHEN WILL RESEARCH FUNDING BE AVAILABLE?


The CDMRP provided a GWI research program pre-announcement on Jan. 27, 2012 to allow investigators time to plan and develop applications for FY12 funding. 


According to the CDMRP, FY12 GWIRP program announcements and general application instructions for the following award mechanisms are anticipated to be posted on Grants.gov in February and March 2012 and application deadlines will be available when the Program Announcements are released. 



Text of Kucinich-Roe "Dear Colleague"




BIPARTISAN LETTER TO SUPPORT THE SEARCH FOR TREATMENTS FOR GULF WAR VETERANS ILLNESS

From: The Honorable Dennis J. Kucinich


SUPPORT THE SEARCH FOR TREATMENTS FOR GULF WAR VETERANS’ ILLNESS
**This is a PROGRAMMATIC REQUEST. No financial disclosures are required. Members would only need to submit the project online as a programmatic request. **

This request is supported by the American Legion, Disabled American Veterans, Vietnam Veterans of America, and Veterans for Common Sense

DEADLINE: MARCH 15, 2012


  
Dear Colleague:

We write to request your support to secure full funding for the Gulf War Illness Research Program within the Congressionally Directed Medical Research Program (CDMRP) at the Department of Defense. 

An estimated 250,000 veterans of the first Gulf War suffer from persistent symptoms such as chronic headache, widespread pain, cognitive difficulties, unexplained fatigue, gastrointestinal problems, respiratory symptoms, and other abnormalities that are not explained by traditional medical or psychiatric diagnoses.  Research shows that as these brave veterans age, they are at double the risk for ALS (Lou Gehrig’s disease) as their non-deployed peers.  

There may also be connections to Multiple Sclerosis and Parkinson’s Disease.  Gulf War veterans suffering from this illness remain without a cure and significant gains from the research program have been made.  We can’t allow Congress to forget these veterans now.  

The GWIRP is the only national program studying this issue, and it is working.  CDMRP-funded researchers at the University of California, San Diego, reported in June on the first successful medication treatment study in the history of Gulf War illness research.  The study showed that the supplement CoQ10 produced significant improvement in a range of symptoms of Gulf War Illness, including one of the most serious, fatigue with exertion.  It is not a cure, and the study needs be replicated in a larger group, but the result is extremely encouraging.

The research conducted by GWIRP is vital not only for ill Gulf War veterans, who currently lack any effective treatments, but also for other U.S. military forces.  To cosponsor, or for more information, please contact Diala Jadallah (Kucinich) at xxx or Laine Evans (Roe) at xxx.

Sincerely,

/s/                                                                     /s/
Dennis J. Kucinich                                                    Phil Roe
Member of Congress                                                 Member of Congress


************************************************************************************

DATE XX, 2012

The Honorable C.W. Young                                                 The Honorable Norman D. Dicks
Chairman                                                                           Ranking Member
Defense Appropriations Subcommittee                                 Defense Appropriations Subcommittee
H-307, The Capitol                                                              1016 Longworth House Office Building
Washington, D.C. 20515                                                      Washington, D.C. 20515
                              

Dear Chairman Young and Ranking Member Dicks:

Thank you for your interest and continued support of the Gulf War Illness Research Program (GWIRP) within the Congressionally Directed Medical Research Programs (CDMRP), including the $10 million awarded to the program for FY 2012. As the Subcommittee begins work on the FY 2013 Appropriations bill for the Department of Defense, we are pleased to point out the dramatic progress made by the program during the past two years. 

In a landmark 2010 report, the Institute of Medicine (IOM) recognized that the chronic multisymptom illness affecting 250,000 Gulf War veterans is a serious disease (not caused by psychiatric illness) that also affects other U.S. military forces, and called for a major national research effort to identify treatments.  The scientific community has responded with a dramatic increase in the quality and quantity of proposals submitted to CDMRP.  Most encouraging, CDMRP-funded researchers have completed the first successful pilot study of a medication to treat one of the major symptoms of Gulf War Illness.  In recognition of this progress, last July a bipartisan amendment to the Defense Appropriations Act of 2012 provided $10 million for the program.

We appreciate the support you have given to make this progress possible, and respectfully seek your support in FY2013 for adequate funding to continue the progress that has been made.  Funding will be used for pilot studies of promising treatments, for clinical trials of treatments shown effective in earlier pilot studies, and for the execution of collaborative treatment research plans developed by consortiums of scientists funded by CDMRP in FY10.

This effective small program demonstrably merits continuation and expansion, even in a time of fiscal austerity. 
The research conducted by GWIRP is vital not only for ill Gulf War veterans, who currently lack any effective treatments, but also for other U.S. military forces.  Assummarized by the IOM committee chair, Dr. Stephen Hauser, in his letters to you dated July 20, 2010, the IOM report recognized that "the chronic multisymptom illness that affects an estimated 250,000 Gulf War veterans -- over one-third of those who served -- also affects other military forces," and that this research is "vital to the health and effectiveness of current and future military forces, in addition to Gulf War veterans."  

The GWVIRP is the only national program addressing this issue.  It is a competitive peer-reviewed program open to any doctor or scientist on a competitive basis.  By contrast, Veterans Affairs (VA) research programs are only open to VA doctors, few of whom have expertise in chronic multisymptom illness.  To effectively address a difficult and specialized problem like this, it is necessary to enlist the entire medical scientific community.

Most importantly, it is working.  CDMRP-funded researchers at the University of California, San Diego, reported in June of last year on the first successful medication treatment study in the history of Gulf War illness research.  The study showed that the supplement CoQ10 produced significant improvement in one of the most serious symptoms of Gulf War illness, fatigue with exertion.  It is not a cure, and the study needs be replicated in a larger group, but the result is extremely encouraging.

At long last, the scientific community has recognized the severity and scope of this problem and is engaged in its solution.  Congress has created this superb program which is succeeding where others have failed.  We respectfully request that you providing the necessary resources to accomplish this vitals mission.

This request has the endorsement of American Legion, Disabled American Veterans, Vietnam Veterans of America, and Veterans for Common Sense

Sincerely,

/s/
<cosigners>

Dr. Lisa Conboy to Present CDMRP-Funded Acupuncture Clinical Trial at USC

Written by Anthony Hardie, 91outcomes.com
March 3, 2012


(91outcomes.com) - Dr. Lisa Conboy, a medical researcher with the Harvard Medical School and the New England School of Acupuncture (NESA), will present initial findings related to her ongoing Gulf War Illness treatment study on Tuesday, March 6, 2012 at the University of Southern California's Center for Innovation and Research on Veterans and Military Families (CIR) in Los Angeles. 


The study, funded through the acclaimed Congressionally Directed Medical Research Program (CDMRP), is a clinical trial of acupuncuncture as a treatment for veterans suffering from Gulf War Illness, a neurological condition with chronic, multiple symptoms thought to have been caused by Gulf War chemicals.


A recent abstract of a published report related to this clinical trial reported that, "this trial is designed to both answer questions of the effectiveness of acupuncture for [the] entire sample, as well as subgroups with of individual presentations of GWI."  The full text of Dr. Conboy's research team's initial report, published in Contemporary Clinical Trials, is available online from Elsevier


The study is centered in the Boston, Mass. area and is still recruiting Gulf War veterans.  


If you are a Gulf War veteran and are interested in learning more about this study and to see if you qualify, please contact NESA at 617-558-1788 Extension 269.


******

IF YOU'RE GOING


WHAT:  Brown Bag lecture, "Acupuncture in the Treatment of Gulf War Illness"


WHERE:  Montgomery Ross Fisher Building 330, University Park Campus, University of Southern California, Los Angeles, Calif.


WHEN:  Tuesday, March 6, 2012, 11:30am to 1:00pm

COST:  Free, RSVP recommended



ADDITIONAL INFORMATION:  Contact Shawna Campbell, shawnaca@usc.edu

******







Arthritis Today: More Weight Equals More Fibromyalgia Pain



Those who weigh the most have the worst fibromyalgia symptoms

By Otesa Middleton Miles


(Arthritis Today - 3/2/12) - Excess weight is known to aggravate fibromyalgia symptoms – such as pain sensitivity and sleep disturbances – and reduce quality of life among patients. New research now shows, the more severe the obesity, the more severe the fibromyalgia symptoms, and those who have abody mass index, or BMI, of 35 or higher experience the worst symptoms.

“I’m not surprised,” says study co-author Terry H. Oh, MD, assistant professor of physical medicine and rehabilitation at the Mayo Clinic, in Rochester, Minn. She says that earlier studies have shown that obesity increases fibromyalgia symptoms, but there hadn’t been concrete information before this study about whether different levels of obesity affected fibromyalgia symptoms differently.

In other words, is all obesity the same when it comes to fibromyalgia? The answer is no: Bigger definitely is worse, leading to significantly more severe symptoms. “The severely obese seemed to have the most problems,” says Dr. Oh.

Her study, which was published online in the journal Arthritis Care & Research, divided 888 adults with fibromyalgia into four groups: non-obese (BMI less than 25), overweight (BMI of 25 to 29.9), moderately obese (BMI of 30 to 34.9) and severely obese (BMI equal to or greater than 35). Patients were tracked for three years, underwent a physical evaluation and were asked to fill out health surveys and the Fibromyalgia Impact Questionnaire (a questionnaire used to assess fibromyalgia’s impact on a patient).

The researchers found – for most symptoms, but not all – that as the BMI category increased, so did the severity of the symptoms. Patients in the highest BMI group, for example, missed work more often because of fibromyalgia symptoms and reported more pain, stiffness and fatigue compared with those who were not obese or less obese. Also, the study found that the severely obese patients had more tender points on their bodies and worse physical functioning than the non-obese and less obese.
Trends showed most symptoms worsened with higher BMI category, but for the most part, the difference in the severity of symptoms was statistically significant for the highest BMI group compared with the other groups. “The group comparison showed the difference was primarily seen between the severely obese and the other groups,” Dr. Oh says. “Symptom severity is very pronounced when obesity is more severe.”

Why is there a relationship between BMI and the severity of fibromyalgia symptoms? Dr. Oh and her team write that multiple factors may be at work, including a higher level of pain receptors in fat tissue, elevated levels of pro-inflammatory cytokines, loss of physical fitness and an increase in mechanical loads on the body. And the higher rate of obesity in fibromyalgia patients “may be caused by a vicious circle of pain andphysical inactivity.”

Dr. Oh urges people with fibromyalgia to find a way to stay active despite the chronic pain and fatigue that come with it, and believes doctors should discuss weight-loss strategies with their fibromyalgia patients.

“Those who are severely obese may need more help for weight-loss management,” she says. “The basic message is that they have to stay active and exercise by starting slowly and gradually in terms of duration, intensity and frequency. It’s more than saying ‘lose weight.’ They need specific recommendations or to see a dietitian or endocrinologist or get other treatment options.”

Akiko Okifuji, PhD, a psychologist at the Pain Research and Management Center and professor at the University of Utah, in Salt Lake City, says it makes sense that those carrying around extra weight would experience more symptoms. Okifuji, who was not involved in Dr. Oh’s study, conducted earlier research on fibromyalgia and obesity, which found that obese fibromyalgia patients had more pain, less physical strength and more sleep problems.

“Both obesity and fibromyalgia are very different persistent conditions that impact overall health, physical well-being as well as quality of life,” Okifuji says.

She believes people intuitively know what Dr. Oh’s study showed – that severe obesity is bad for fibromyalgia patients. “But it’s good to show it scientifically,” Okifuji says. “Patients need proper nutritional education. It is difficult when you don’t move much. Sometimes food becomes a comfort. 

They need education on how to deal with that and how to maximize calorie burning while minimizing intake. When dealing with chronic fatigue and chronic pain, it is very difficult to do weight management. The key issue for the scientific and clinical community is to come up with an effective [weight management plan] for people who can’t move that much. It’s a tricky thing.”

Thursday, March 1, 2012

Blogging About Gulf War Illness: An Unexpected Public Response to Proposed VA Rule Change




(91outcomes.com) - This week, our friends at the U.S. Department of Veterans Affairs (VA) are in for a special surprise -- 169  public comments posted in response to VA's regulation change extending the sunset (expiration) related to applying for service-connection benefits for ill Gulf War veterans.

Typically, these sorts of open public comment period on VA's rule making only garner a handful of public comments, perhaps a couple dozen at most.  This time, more than a dozen dozen weighed in.   

Not surprising were the many comments expressing firsthand the ongoing pain and suffering of a Gulf War veteran.  

Benevolent VA officials were almost certainly simply trying to quickly and efficiently do the right thing by extending a benefits application deadline by another five years, which is certainly better than letting the deadline simply expire and easily appreciated.

But perhaps very surprising to these officials, most of the public comments expressed frustration that this kind of a kick-the-can-down-the-road approach is simply not the right way to approach this issue.  

Instead, and not at all surprising from the perspective of ill and worn out Gulf War veterans, commenter after commenter called for this extension to be made permanent.  

Almost every day, I read the words of dozens of ill Gulf War veterans and their loved ones, in personal messages, comments left on this and other websites, posted online in forums and Facebook groups.  Their pain and sense of feeling alone and forgotten is at times overwhelming.  The frustration sometimes turns on each other, but equilibrium is soon restored as cooler heads, a sense of community, and shared pain prevail.  And this time, the frustration seemed to bubble over and turn into energy and then action.   

Without public participation, democracy quickly becomes undemocratic.  And so, to the many Gulf War veterans and their loved ones who took the time and effort to weigh in with those making decisions for you, whatever your views or comments, however long or short, however detailed or to the point:  well done.   

To the much, much larger body of Gulf War veterans and their loved ones out there who are equally suffering, know that 169 of your fellow Gulf War veterans, their loved ones, and others who support you spoke up and made their voices heard on your behalf, saying what needed to be said.   

Today, I am in pain.  Today, I am worn out.  But today, I have new hope that once again the Gulf War veteran community may be truly reawakening.  

**UPDATE Sunday, Mar. 4., 2012 -- I have been told that VA officials are taking this outpouring seriously.  This will indeed be encouraging if this support is backed up by action.

*********



One ill Gulf War veteran commented that this rule extension is only one of many issues for our community.  I could not agree more. 

So, stay tuned for: 
  • Ensuring the GWI CDMRP is fully funded in the FY13 Defense Appropiations Acts in both House and Senate bills in this year's round of mandated, massive Congressional budget slashing -- it won't be an easy battle and will likely require a whole lot of collective letter writing, emailing, and phone calling.
  • Seeking a large increase in GWI CDMRP funding to $25-40 million, a difficult but not impossible reach.
  • Seeking inclusion in relevant Gulf War benefits laws for the "lost" Gulf War veterans -- those who served in Israel, Turkey, the Red Sea, and other areas awarded the Southwest Asia Service Medal (SWASM) but inexplicably not authorized the same benefits as other Gulf War veterans.
  • Seeking House authorization of the GWI CDMRP in the FY13 National Defense Authorization Act (NDAA) to help ensure the program's continued existence.
  • And then.... 

Meanwhile, it's important for as many as possible from the increasingly reactivated Gulf War veteran community to continue to stay on top of the reports and progress of things that directly affect us, such as:


  • VA Gulf War Task Force. Its last annual report contained a whole lot of plans, some good, some that needs adjustment.  This will take a lot of work inside and outside VA, and continued monitoring and involvement by the Gulf War veteran community.
  • VA Research Advisory Committee on Gulf War Veterans' Illnesses (RAC-GWVI). This permanent, statutorily-mandated oversight and advisory body created by us and for us through legislative action Gulf War veterans sought and fought hard to win way back in 1998.  The RAC is composed of roughly two-thirds brilliant medical researchers and roughly one-third ill GW veterans (including me).  It meets two to three times per year and functions in many ways, including holding VA's feet to the fire, hosting important medical research updates, and crafting national public reports that have impact across government and society (recall the Nov. 2008 global headline, "Gulf War Illness is Real" and the seismic shift that influenced -- including IOM's agreement with that finding, then additional rounds of Congressional hearings, then renewed openness in Congress to fund *TREATMENT*-related medical research instead of the other things funded over other previous 15 years).   
    • Restoring VA funding for GWI research to at least $15 million per year.  The latest budget shows it has been funded at just $5 million per year in recent years, and is proposed to be held steady at that unacceptably low level.  
  • VA Gulf War Illness Research Strategic Plan. It's not done yet, and has not yet been approved as it makes its way through the complexities towards ultimate approval. Implementation will be key as well. 
    • As called for in the new, draft Gulf War Illness Research Strategic Plan, expanding VA Gulf War research to focus (finally) on improving the health and lives of ill Gulf War veterans.  What was it focused on before?  Let's not go there.  
  • The new Gulf War data report (formerly GWVIS). This is the bean-counting report on VA usage, and believe me, Gulf War veterans need to be counted. The more Gulf War veterans cost the federal government in long-term disability benefits, the more cost-effective to national leadership it becomes to try to help Gulf War veterans get better and get back to living their lives to the fullest, including working if once again able to do so after effective treatment. 
  • The new VA Office of Public Health Survey. It will go out to 30,000 Gulf War veterans. Several Gulf War veterans expressed outrage during the most recent RAC meeting in Washington, DC earlier this month that it still primarily on stress and not on GWI and our physiological health.  Other members of the RAC agreed. This must be fixed, or all the good will VA has been working to rebuild with Gulf War veterans stands to be lost.  


--Anthony Hardie, Gulf War veteran, Madison, Wis.