Monday, January 9, 2012

Boston CDMRP Study Seeking GWI Patients for Study



Are you a veteran of the Gulf War (1990-1991)?

We seek men and women who served in the Gulf region during the first Gulf War (1990 -1991) for a research study. 

Gulf War veterans with or without Gulf War Illness are eligible. 

This involves one visit to Massachusetts General Hospital during which various tests for nerve injury will be performed, including removal of a small skin-biopsy from your lower leg under local anesthesia. 

Payment for participation is offered. 

For more information, please contact NerveUnit@partners.org or (617) 726-9391.

IRB#99-9042

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Gulf War Illness Small Fiber Polyneuropathy Study (Boston)

MGH

Click on this link to find out about Massachusetts General Hospital's Gulf War Illness Study:
 (Please note: This Adobe Acrobat .pdf file may take a while to download.)


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Patient Information Sheet
DOD Sponsorship and Access to Research Records
Protocol # 1999-P-009042/123; MGH Legacy # 98-7346; HRPO Log # A-16118

Study Title: Undiagnosed Small Fiber Polyneuropathy: Is It a Component of Gulf War Illness?

Investigator: Anne Louise Oaklander, MD, PhD 

Research Site: Massachusetts General Hospital

The purpose of this information sheet is to provide additional information to the Research Consent Form(s) you are being asked to read and sign before starting this study.

We want you to know that this specific study is being funded by the Department of Defense (DOD) under a grant. Representatives of the DOD, specifically the U.S. Army Medical Research and Materiel Command (USAMRMC), may review your research records as part of their responsibility to protect human subjects in research. You have the right to decline participation in this study based on the source of the funding.

If you have any further questions about the DOD funding or the USAMRMC access to research records, please contact the Office of Research Protections, Human Research Protection Office in Fort Detrick, Maryland at 301-619-2165. For any other questions related to the study, please contact Dr. Oaklander at 617-726-9391. 

3 comments:

Julie said...

I have left multiple messages with specifics about calling me back that seem to go unheard. I do not understand the procedure for this if I am calling a "general" number that appears unmanned.

91outcomes said...

Suggest you email SIena at snapoleon@partners.org. Perhaps there's an issue with the phone number listed?

Julie said...

Thanks for that info. I sent the email and will wait and see what happens.