Monday, July 7, 2014

USA TODAY: VA rejects link between Gulf War service and cancers

Editor's note:

The article below details the latest VA assault on veterans of the 1991 Gulf War, where a letter from House Veterans' Affairs Committee senior members to VA leaders requesting new presumptives for claims by Gulf War veterans was flatly denied.

Sadly, this is yet one more example of it goes when VA is "asked nicely".  The scientific research evidence for brain cancer in Khamisiyah is compelling, as is noted in this article, yet VA still twists an IOM report to their own advantage (VA wrote the contract for that IOM report, by the way) and now VA denies this new presumptive.  

And sadly, the research evidence for the other conditions is not yet compelling on its fact, as the article also notes -- and this fact is another angering example of why VA's research leadership must be held accountable to perform the right research and to report properly on medical research related to Gulf War veterans.  These serious issues of another area where VA is badly broken are not new, they've been the subject of repeated RAC reports and public meetings and Congressional hearings and testimony over many years.

It's now clear that legislation must be introduced and enacted for a Khamisiyah brain cancer presumptive, and it must be made retroactive to ensure benefits for the surviving spouses including where the veteran may not have had a claim on file that could be approved.  To allay Congressional budget hawks' concerns, the bill's cost should be relatively small given the relatively small number of these brain cancer deaths.  However, for the surviving spouses of those affected, the impact would be profound, and provide a small measure of justice for them.  

Additionally, all of this is just one more fuel for why H.R. 4261, the Gulf War Health Research Reform Act of 2014, must be enacted to ensure the kinds of independent research review that is necessary.  However, currently VA staff are winning over Gulf War veterans in the Senate, where the bill is languishing without action and will not be taken up in the current conference committee, contrary to previous assertions that Gulf War veterans' advocates took to be true on their face.

-A.H.






SOURCE:  USA Today, July 7, 2014 - Kelly Kennedy Reporting

http://www.usatoday.com/story/news/nation/2014/07/07/gulf-war-vets-claim-high-cancer-rates/11368525/

ARCHIVED ARTICLE:

VA won’t add to Gulf War ‘presumptive’ conditions for now


WASHINGTON — The Department of Veterans Affairs has rejected a request from members of Congress and veterans advocates to make brain cancer, lung cancer and migraines presumptive conditions for Gulf War veterans. Officials said they cannot prove the high rate of these illnesses among Gulf War vets are related to military service.
VA officials said the number of brain cancer deaths for soldiers exposed to sarin gas was too low to be conclusive, though it was double the rate of soldiers not exposed.
And the rate of lung cancer deaths, though 15% higher than those who did not serve in the 1991 Gulf War, is "inconclusive" because researchers did not know how many of the servicemembers smoke.
"I'm disappointed with their decision, but hold out hope that further studies will convince the VA," Rep. Timothy Walz, D-Minn., told USA TODAY. "We must ensure our brave veterans get the care they need, and this is part of that effort."
If a veteran is diagnosed with a presumptive condition, Veterans Affairs is required to assume that it is military-connected, and that the veteran is then entitled to medical or disability benefits associated with the diagnosis.
Those exposed to smoke after Saddam Hussein set his oil wells on fire, as well as to sarin gas after the U.S. bombed a munitions plant in Khamisayah, Iraq, saw an increased risk of brain cancer, according to a study Rep. Mike Coffman, R-Colo., and Walz cited in letters to former VA Secretary Eric Shinseki in March.
As many as 100,000 troops may have been exposed to sarin, a nerve agent, according to the Defense Department, but a recent study shows more may have been affected.
Gulf War vets also saw a "significant relative excess" of lung cancer, according to a second study. And a third study showed that veterans with chronic fatigue syndrome or Gulf War Illness were likely to also suffer migraines, the lawmakers wrote.
"I am very interested in your opinion of whether the studies enclosed are sufficient to add these three health problems to the list of presumptives related to Gulf War Illness," Coffman wrote in March. "If you believe they are not, please detail the VA's current and planned efforts related to these three problems."
Robert Jesse, VA's acting undersecretary for health, turned down the request, saying that the Institute of Medicine found "inadequate and insufficient evidence" for an association between Gulf War service and the diseases.
"IOM stated that there 'is no consistent evidence of a higher overall incidence of cancer in veterans who were deployed to the Gulf War than in non-deployed veterans,'" Jesse wrote in a letter to Walz.
Ron Brown, president of the National Gulf War Resource Center, said the official response flies in the face of VA's own research.
"What they've done is used the overall population of deployed veterans during Desert Storm," he said. "If you use the whole population, it does not show an increase of cancers, but if you look at Khamisiyah, there are significant increases of cancers."
A 2007 Institute of Medicine study found that, though the number of cases was small, the brain cancer death rate for servicemembers in the sarin-gas exposure zone was twice as high as for servicemembers outside it, according to the American Journal of Public Health. For unexposed soldiers, the brain cancer death rate from 1991 to 2000 was 12 per 100,000. For those near Khamisiyah, the rate was 25 per 100,000.
Jesse said, in his letter, that there had been "little previous evidence" of a connection between sarin and brain cancer.
According to a VA website about the study, "Controlling for oil well fire smoke exposure, Army Gulf War veterans who were potentially exposed to nerve agents at Khamisiyah had a higher mortality rate from brain cancer compared to Army veterans who were not considered exposed."
Victoria Davey, VA's chief officer of public health, wrote in a letter to Brown that there was a 15% "excess risk of lung cancer" associated with Gulf War deployment, but said that study was inconclusive because the researchers didn't know whether the servicemembers were smokers. She wrote that there was a concern because about 5% more Gulf War veterans smoked than did veterans who did not deploy.
According to the American Cancer Society, the average age of someone who smokes who is diagnosed with lung cancer is 70. Fewer than 2% of all cases are found in people younger than 45. According to VA, the average age of a Gulf War veteran is 44.
Gulf War veterans already have presumptive status for chronic fatigue syndrome, fibromyalgia, gastrointestinal disorders, and undiagnosed illnesses that include weight loss, fatigue, cardiovascular disease, muscle and joint pain, headache, menstrual disorders, neurological and psychological problems, skin conditions, respiratory disorders and sleep disturbances, according to VA.
Data recently released by the VA show that 80% of disability claims filed by Gulf War veterans for conditions related to the war were denied.
"This is nothing new," Brown said. "Our veterans have been fighting for 23 years to get the benefits they've earned."

Sunday, July 6, 2014

BRADENTON HERALD: Manatee's Roskamp Institute steps up in veterans' battle with Gulf War Illness

SOURCE:  Bradenton (Fla.) Herald, July 6, 2014 (James A. Jones, Jr. reporting)

http://www.bradenton.com/2014/07/06/5242082/manatees-roskamp-institute-steps.html


ARCHIVED ARTICLE:

Manatee's Roskamp Institute steps up in

veterans' battle with Gulf War Illness

Roskamp Institute provides key research on ailment affecting at least 175,000 veterans

jajones1@bradenton.comJuly 6, 2014 Updated 3 hours ago
MANATEE, FLA. -- U.S. forces suffered fewer than 200 battle deaths during the 1990-91 Gulf War as they drove Saddam Hussein's Iraqi military out of Kuwait.
It was a textbook example of military precision and power that gave little hint of the looming health disaster that would befall many Gulf War veterans.
By some estimates, one in three veterans of that war would eventually struggle with Gulf War Illness.
"Gulf War Illness is a serious physical disease, affecting at least 175,000 veterans of the 1990-1991 Gulf War, that resulted from hazardous exposures in the Gulf War theater," according to a research advisory committee report released in April.
Gulf War vets were frustrated by years of governmental inaction on their problems, just as Vietnam veterans were two decades earlier with Agent Orange.
But now, some of the most significant research on Gulf War Illness is being conducted at Roskamp Institute in Manatee County.
The research is funded under the Gulf War Illness Congressionally Directed Medical Research Program [CDMRP].
Roskamp Institute is best known for its ground-breaking research on Alzheimer's Disease. The disease can now be cured in mice. Roskamp is conducting Phase III clinical trials on an Alzheimer's drug for humans in Europe.
It's a big step from mice to humans in developing treatments, said Fiona Crawford, president of Roskamp Institute.
Similarly, Roskamp has developed mouse models of Gulf War Illness, she said.
"We try to mimic the disease in people with mice," Crawford said.
Roskamp researcher have exposed mice to some of the same agents that soldiers were exposed to in the Gulf War.
Initially, the mice may appear OK, then as they age they begin to show the same symptoms experienced by Gulf War vets.
Of mice and men
The best way to develop a model for the disease is by working with mice, said Tanja Emmerich, a doctoral student researching Gulf War Illness at Roskamp Institute.
"We have a mouse model where we look at the blood and see certain changes. Then we look at human blood and see certain changes. We can determine how well the model works," Emmerich said.
Treatments that work on mice offer clues about what might help people as well.
"We're trying to make the bridge here," she said.
Treating Gulf War Illness is difficult because symptoms differ greatly from one person to another.
"Symptoms typically include some combination of widespread pain, headache, persistent problems with memory and thinking, fatigue, breathing problems, stomach and intestinal symptoms, and skin abnormalities," according to a Research Advisory Committee on Gulf War Veterans' Illnesses.
The research at Roskamp is being used to develop a panel of bio markers for Gulf War Illness, Emmerich said.
Roskamp researchers said they expect to start recruiting soon from the local veterans population for clinical trials of an FDA-approved drug to treat Gulf War Illness.
In the coming months, Roskamp is planning an open house for veterans, healthy or not, who would like to hear about work the institute is doing and who would like to possibly participate in screening.
"It's heart-breaking to have folks come up and say no one is listening to them. We tell them they are not alone," Crawford said.
One of the greatest rewards Emmerich said she receives from her research is having vets tell her that they are happy someone is listening to them and taking their concerns seriously.
Anthony Hardie, a Bradenton resident who is a nationally recognized advocate for vets with Gulf War Illness, has testified before Congress, and has also shared his experiences with Roskamp. He is such a passionate and knowledgeable speaker that researchers listen raptly when Hardie talks.
Hardie believes he came in contact with toxic agents when going through an Iraqi bunker, based on the odor of geraniums and white onions that he smelled. Lewisite, which has the smell of geraniums, is a blister agent or lung irritant. Mustard gas may smell like garlic, mustard or onions.
"It had all the classic signs of a chemical warfare agent," Hardie said.
As many as 250,000 of the 697,000 U.S. troops who served in the Gulf War may be dealing with Gulf War Illness, Hardie said.
Hardie suffers from chronic, widespread pain, sleep disturbances, frequent infections, and fatigue.
Dealing with the VA
When the Persian Gulf War Veterans Act of 1998 was enacted, Hardie hoped his work was done.
"It was our first experience with VA bureaucrats fighting laws they don't like," he said. "We still have a significant amount of denial from high-level bureaucrats."
Too often VA has been more concerned about its budget than the needs of veterans, Hardie said.
"We need to have actual treatment research. We need to have our Gulf War veterans adequately compensated for their illness. VA has an 80 percent denial rate for Gulf War claims."
With the recent VA scandal growing out of Phoenix and spreading nationwide, the public has finally become aware of VA issues, he said.
Hardie applauds the research being done at Roskamp but says the federal government needs to be spending much more on research.
"We're spending a drop in the bucket for an illness that affects one in three Gulf War veterans. That makes me angry. We have a long, long way to go, and the VA is still failing veterans."
For more information about Roskamp veterans screening, call 941-752-2949, ext. 395. For more information about Roskamp Institute, visit rfdn.org.
***
James A. Jones Jr., Herald reporter, can be contacted at (941) 745-7053 or on Twitter @jajones1.  Jones is a U.S. veteran of the Vietnam War.

Read more here: http://www.bradenton.com/2014/07/06/5242082/manatees-roskamp-institute-steps.html#storylink=cpy

Wednesday, July 2, 2014

MILITARY.COM - Gulf War Vets Hope VA Changes Yield Progress


SOURCE:  Military.com, Bryant Jordan reporting, 7/1/2014


http://www.military.com/daily-news/2014/07/01/gulf-war-vets-hope-va-changes-yield-progress.html?comp=7000023317828&rank=1#.U7NdF8f6XVQ.mailto


ARCHIVED ARTICLE:

Gulf War Vets Hope VA Changes Yield Progress

Oil fire
Gulf War veterans critical of the Department of Veterans Affairs' record on addressing their health problems are hoping the VA's new health administrator is a sign things will change.
Dr. Robert Jesse, named Acting Under Secretary of Health after Dr. Robert Petzel resigned amid thescandal involving manipulated patient appointmentsthat contributed to veteran deaths, was replaced on Wednesday by Dr. Carolyn Clancy, previously assistant deputy undersecretary for health for quality, safety and value.
Jesse had a history with Gulf War vets as the VA's point man on Gulf War Illness (GWI) research. It was a role that won him no praise from the Research Advisory Committee on Gulf War Veterans' Illnesses, a veteran-heavy group whose work Jesse sought to undermine, according to its chairman.
"The one personnel action that he did take [with the committee] was to propose full committee membership to two scientists whose view is that Gulf War Illness is connected to stress," RAC Chairman James Binns told Military.com. "Jesse is a very personable individual and we initially hoped his appointment would mean the VA's policy would change, but in fact he was just as much as advocate for the old policy."
The VA has long been criticized by veterans and advocates who say the department has dragged its feet on GWI research and refused to recognize that health problems are linked to exposures to oil well fires, depleted uranium, pesticides, and the pills troops to protect them from nerve agents. Reported health problems related to GWI include chronic fatigue, headaches and pain, memory problems, skin rashes and gastrointestinal disorders
Data recently released by the VA shows that 80 percent of disability claims filed by Gulf War veterans for conditions related to the war were denied.
Last March, a former VA epidemiologist testified that the department's Office of Public Health buries or obscures research findings on veterans exposed to environmental toxins and hazards going as far back as the Gulf War.
"Anything that supports the position that Gulf War illness is a neurological condition is unlikely to ever be published," Steve Coughlin told the House Veterans Affairs Committee.
Binns said he has no dealings with Clancy and does not know what to expect. He is hoping she will be more aggressive and transparent in resolving GWI issues.
"Unfortunately, the pattern in the past is that a person connected with minimizing Gulf War Illness has been replaced by people who follow the same [thinking]," Binns said.
Rep. Mike Coffman, R-Colo., a Gulf War veteran and one of the strongest voices on Capitol Hill for that constituency, said he has been "extremely disappointed" at the actions and conduct of the VA, including Jesse, in addressing GWI and working with the Research Advisory Committee.
"Care for Gulf War veterans has stagnated and quite simply, VA is not conducting the necessary research," Coffman said on Friday. Coffman serves on the House Veterans Affairs Committee and chairs its subcommittee on oversight and investigations.
During a June 13 hearing Coffman demanded to know from Jesse if the VA was hiding data on Gulf War Illness, just as it has been found to be hiding information about manipulated patient wait times at VA hospitals across the country.
Jesse insisted that the VA is not hiding data.
"I have been told Dr. Jesse will be remaining in VA in a medical capacity as a physician and clinician," Coffman told Military.com. "I sincerely hope his medical skills will more positively impact veterans than his conduct toward the Research Advisory Committee for Gulf War Illnesses."
With Jesse going the way of Petzel, who was also viewed by Gulf War veterans as an obstacle to fully and honestly researching Gulf War Illness, Binns said this "is the opportunity for the VA to cleanse itself of these [past] practices that have created such a toxic culture."
"Now's the time to get [all the facts] out in the open," he said. "Start fresh rather than continue to hide some of these completely dishonest practices, which forces otherwise decent people to lie in the course of their job."
-- Bryant Jordan can be reached at bryant.jordan@monster.com

Monday, June 16, 2014

Oklahoma Gulf War Veteran Waits 7 Years for VA Appointment


SOURCE:  NewsOK.com, Jaclyn Cosgrove reporting, 6/16/2014

http://newsok.com/oklahoma-veteran-waits-years-for-allergy-appointment/article/4913485



ARCHIVED ARTICLE:


Oklahoma veteran waits years for allergy appointment

Gulf War veteran Brad Harber had to wait years within the Oklahoma City VA health system before he got relief for chronic allergy problems.
by Jaclyn Cosgrove Published: June 16, 2014


photo - 
Veteran Brad Harber, of Newalla, waits Thursday, June 12, 2014for his allergy shot at the Oklahoma Allergy and Asthma Clinic from registered nurse Dawn Hardy. Harber goes weekly for shots. Harber has struggled to get the Oklahoma City VA Medical Center to provide consistent allergy care. Photo by Jaclyn Cosgrove, The Oklahoman
 <strong>Jaclyn Cosgrove</strong>
Veteran Brad Harber, of Newalla, waits Thursday, June 12, 2014for his allergy shot at the Oklahoma Allergy and Asthma Clinic from registered nurse Dawn Hardy. Harber goes weekly for shots. Harber has struggled to get the Oklahoma City VA Medical Center to provide consistent allergy care. Photo by Jaclyn Cosgrove, The Oklahoman Jaclyn Cosgrove
Veteran Brad Harber’s problems with the Oklahoma City VA Medical Center began with a stuffy nose and watery eyes.
What followed was a five-year odyssey as he sought unsuccessfully to get treatment for his allergies.
Harber, a Gulf War veteran, chronicled his experience, keeping hundreds of pages of medical records and recording countless phone calls with medical center officials.
As the VA struggles with allegations of poor patient care and long wait times across the nation, Harber’s case offers a local example of the frustration some veterans feel when seeking help from the federal agency.
“I know for a fact that the problem is they are way understaffed,” Harber said.
“The second thing is, ... even if they had the amount of staff it took, they don’t have the facilities. There’s nowhere to put these people. And the worst part is, it’s very much a morale killer for those employees because many of them are veterans, too. They don’t want veterans to be mad about treatment. They don’t want people to have to wait so long, and I’m sure these people for the most part don’t approve of these (waiting) lists.”
A different story
In the past two months, the U.S. Department of Veterans Affairs has been placed in the national spotlight over its fractured system of care, with veterans across the country waiting too long for care.
A Veterans Affairs audit released Monday showed that wait times for new patients trying to see a primary care physician, specialist or mental health professional vary widely across the nation.
Overall, wait-time figures for the Oklahoma City and Muskogee’s Jack C. Montgomery VA Medical Center Home were generally better than dozens of VA facilities in other parts of the U.S. where there were longer wait times for new and established patients, but officials said they are still working to improve veterans’ access to care.
Harber’s experience tells a different story.
For years, Harber kept hundreds of pages of medical records and recorded phone conversations he had, attempting to obtain consistent care for his allergies.
During a phone conversation in April 2011, Harber talks with an OKC VA employee about the attempts he has made to schedule an appointment with an allergist.
Harber tells the woman he has been waiting, he thinks, three years for an appointment because the OKC VA didn’t have a contracted facility to provide allergy care, he said.
“Three years? My goodness, I was thinking a year was about the longest that we had right now,” the woman says.
The woman checks the system for Harber’s records, trying to understand why he has waited so long. She is patient and listens to his concerns, often agreeing with him during the conversation.
Harber tells the woman that he was told he was on the waiting list.
“I hate to say this, but they told a lot of people that, and there was no such waiting list,” she tells him.
“I understand your anger. I would be angry, and I would suggest that you contact somebody about it, because the only thing I can do is tell you you need to go to your primary care physician and have them turn in a consult.”
Harber tells her that his VA primary care doctor turned in a consult request for him to see a specialist for his allergies.
She tells Harber that, actually, they haven’t. She looks in the system and finds that his consult was scheduled for Sept. 14, 2006. It had been almost five years.

Friday, June 13, 2014

Veteran advocates remember Steve Robinson | The Rundown | PBS NewsHour

Veteran advocates remember Steve Robinson | The Rundown | PBS NewsHour

VA Access Scandal Focus Begins to Pivot to Gulf War Veterans

(Veterans for Common Sense & 91outcomes.com - June 13, 2014) - A Congressional hearing yesterday on the current VA healthcare access scandal shifted focus to Gulf War veterans' health and VA stonewalling there, too.
Rep. Mike Coffman (R-Colo.), who chairs the House Veterans' Affairs Subcommittee on Oversight and Investigations, probed VA's Acting Undersecretary of Health Dr. Robert Jesse with challenging questions during yesterday's intense Congressional hearing: "Is the VA hiding vital information about a quarter of a million Gulf War veterans who are waiting for care, just as the VA has been hiding information on veteran patient wait times?  Will you provide the committee with all of the Gulf War data within 30 days?", demanded Coffman.
Jesse's stonewalling response led to ever more probing questions by the Colorado Congressman, a U.S. Marine Corps veteran who service includes the 1991 Gulf War.
Coffman's Gulf War health research reform bill passed the entire U.S. House of Representatives on May 28, and is currently awaiting action by the Senate Veterans' Affairs Committee chaired by Sen. Bernie Sanders (I-Vt.).
As a Gulf War veteran, I’ve been extremely disappointed at the actions of VA staff to misdirect Gulf War illnesses research by reviving the scientifically discredited concept that ‘the same thing happens after every war,’ and to eliminate oversight, just as science is finally making some progress,” said Coffman in a USA Today article about the bill.  
According to a Military.com article todayChairman Jim Binns of the federal Research Advisory Committee on Gulf War Veterans' Health -- the federal advisory panel with responsibility for Gulf War health research -- said, "that he is hoping the revelations about appointment schedule manipulation across the VA will put more pressure on the department to reveal what it has on Gulf War Illness."
"It is worse than [the wait list issue]. It affects more veterans," Binns told Military.com. "This is not just delaying care. This is denying care entirely."
In 2012, the Gulf panel chaired by Binns issued a scathing report of "no confidence" in the VA's ability to research or find treatments for Gulf War Illness, reported Veterans News Now, despite numerous scientific panels and experts saying treatments can likely be found.
A Congressional hearing in March 2013 that included testimony by VA whistleblower Dr. Stephen Coughlin was followed by VA retribution against the VA Gulf War panel.  
In June 2013, Gulf War veteran members of the Gulf War panel walked out to protest VA changes, "designed to neuter the panel," reported the Army Times.   The USA Today simultaneously reported that, VA was "gutting [the] Gulf War Illness panel". In a June 30, 2013 article, 91outcomes detailed the issues involved and VA's responses.
In January 2014, USA today reported, that a, "VA doctor says Gulf War vets not getting effective treatments," and that the "Miami [VA] clinic has treated Gulf War illness successfully, but methods have not been disseminated for use in other clinics in the VA system."
A June 9 article by VCS, "242,000 Veterans Waiting, Problems Documented but Unaddressed for 15 Years", documented the extent of the current VA access scandal.
And on June 4, a Reno Dispatch exclusive, "White House Honoree Slams VA, Says Administration’s Investigation Barely Scratches the Surface", covered a letter from Binns to White House, Congressional, and VA officials, and which said, "the investigation cannot be entrusted to VA staff or even the IG."  
"The Chief of Staff, the Acting Undersecretary for Health, and the Undersecretary for Benefits are themselves directly implicated,” wrote Binns in the letter, who chairs the Research Advisory Committee on Gulf War Veterans’ Illnesses, which Congress established in 1998 to advise VA on research to improve Gulf War veterans’ health. “Like the Gulf War battlefield,” he wrote, “VA is a toxic environment.” 
On June 5, after Military Times reported a 4 out of 5 denial rate for Gulf War Illness Claims with only just over 11,000 Gulf War Illness claims approved, Veterans for Common Sense republished, "VA’s Unacceptable 80 Percent Denial Rate of Gulf War Illness Claims – What’s behind the numberswritten by a VCS Board member.   
Binns notes that data in quotes in today's Military.com article,  and emphasizes that this denial rate is out of more than 250,000 ill veterans of the 1991 Gulf War.
 "If lying about the wait list is bad, lying about science and falsifying reports is much more serious," Binns told Military.com. "And the lying goes up and down the organization, to the very top."
-Anthony Hardie
###




Military.com: Rep Wants VA Research Data on Gulf War Illness



SOURCE:  Military.com, Bryant Jordan reporting

http://www.military.com/daily-news/2014/06/13/rep-wants-va-research-data-on-gulf-war-illness.html


ARCHIVED TEXT:


Rep Wants VA Research Data on Gulf War Illness

gulf war shake 600x400
A congressman from Colorado asked the Department of Veteran Affairs Friday for data on the number of veterans suffering from Gulf War Illness in light of the discovery that the VA had hidden thousands of veterans on secret waiting lists who needed care.
"Is the VA hiding vital information about a quarter of a million Gulf War veterans who are waiting for care, just as the VA has been hiding information on veteran patient wait times?" Rep. Mike Coffman, R-Colo., asked Acting Under Secretary for Veterans Health Dr. Robert Jesse.  "Will you provide the committee with all of the Gulf War data within 30 days?"
Jesse said he the VA is not hiding veterans suffering from Gulf War illness. Gulf War veterans say the VA ignored for years links between their service and chronic conditions that include unremitting pain, memory loss, intestinal disorders and exhaustion.
"We're not hiding data," Jesse told Coffman during a hearing before the House Veterans Affairs Committee. He followed up saying he could provide access to as much data the VA owned that didn't interfere with privacy rights.
"We're not looking for individual names here," said Coffman, who served in the Gulf War as a Marine. "We're looking for the conclusions of the research ... I want Gulf War veterans to have access to this data, not just me."
Jesse testified before the House committee in response to revelations that officials and staff at VA hospital and clinics across the country have manipulated patient appointment wait times to make it appear they were meeting performance goals.
The VA has found more than 100,000 veterans waited months for an appointment rather than the two weeks expected or never got an appointment at all.
Coffman's changed the subject to focus on Gulf War Illness a week after the House passed his legislation to make the VA's Gulf War Illness research more transparent.
Coffman has been critical of the VA's efforts to get to the bottom of Gulf War illnesses, accusing the department of misdirecting research funding. Coffman also slammed the VA for dismissing Gulf War illnesses as "something that happens after every war," saying that attitude "dishonors the service and sacrifices of those who fought in that war."
James Binns, chairman of the Research Advisory Committee on Gulf War Veterans' Illnesses, said Coffman's bill would restore to the committee its authority to review the effectiveness of VA's research program the research.
The VA leadership, including Jesse, stripped that authority from the committee a year ago after the advisory committee reported on some of the abuses to former VA Secretary Eric Shinseki.
Binns delivered his report in a different forum on March in testimony before the House Veterans Affairs Committee on March 25.
Coffman's bill would make the advisory committee an independent panel within the VA, with the majority of its members appointed by the chairmen and ranking members of the House and Senate veterans' affairs committees. Now, they are appointed by the VA.
Last year Dr. Steven Coughlin, who resigned his job as a senior epidemiologist in the VA's Office of Public Health, told lawmakers that OPH buries or obfuscates data the VA does not want in the public, including veterans' health problems from toxic exposures during the Gulf War and more recent exposures to burn pits in Iraq and Afghanistan.
Coughlin also told Congress that OPH had manipulated information on veterans' health through the questions included in its surveys.
"On the rare occasions when embarrassing study results are released, data are manipulated to make them unintelligible," Coughlin told the House panel.
The information Coffman is demanding stems from a 2010 study of 60,000 Iraq and Afghanistan war veterans, of which between 20 to 30 percent also served in the 1991 Gulf War.
Coughlin's testimony revealed that the study produced data on veterans' exposures to pesticides, oil well fires, and pyridostigmine bromide pills that were taken by Gulf War vets as pretreatment for possible exposure to nerve gas.
Not only was the data not released, he told Congress, but VA never revealed that it had this information on Gulf War veterans. 
"Anything that supports the position that Gulf War illness is a neurological condition is unlikely to ever be published," he said.
Binns told Military.com that he is hoping the revelations about appointment schedule manipulation across the VA will put more pressure on the department to reveal what it has on Gulf War Illness.
"It is worse than [the wait list issue]. It affects more veterans," he said. "This is not just delaying care. This is denying care entirely."
The VA has found that more than 57,000 veterans had to wait about 90 days for an appointment after requesting one, while another 60,000 over the past 10 years never saw a doctor after seeking an appointment.
An estimated 250,000 Gulf War veterans reportedly are suffering from the effects of exposure to toxins during the conflict. The VA has to date awarded disability compensation to just over 11,000 Gulf War vets for what it calls Gulf War-related illnesses.
Another 20,000 have gotten VA disabilities for conditions it does not connect to the 1991 conflict, Binns said.
"If lying about the wait list is bad, lying about science and falsifying reports is much more serious," he said. "And the lying goes up and down the organization, to the very top."
-- Bryant Jordan can be reached at bryant.jordan@monster.com

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